Congress acts to protect the most personal data – genetic information

Congress recently passed the 21st Century Cures Act, which includes important new protections for genetic privacy, which were top priorities of U.S. Senator Mike Enzi, R-Wyo.

The bill strengthens privacy protections around the collection of genetic information for medical research participants. As federal agencies and other groups continue advancements in scientific health research, their collection of individual’s personal genetic information continues to grow larger and larger.

“There have been amazing advancements in genetic research – personalized medicine and the truly remarkable work bei...